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June 24, 2024

Navigating Hospice Care When Families Disagree

We understand that you may be going through a difficult time with a loved one who is receiving hospice care, and that there may be communication challenges within the family. This can be a very stressful situation, and we want to assure you that there are resources available to help you navigate this.  

Here are some tips on how to stay informed about hospice care for a loved one when families do not communicate:

  • Talk to the hospice team: The hospice team is a great resource for information about your loved one’s care. They can provide you with updates on their condition, answer your questions, and offer support. Be sure to let them know that you are concerned about communication within the family, and ask them if they can provide you with information or resources.
  • Communicate with your loved one directly, if possible: If your loved one is able to communicate, talk to them directly about their wishes and preferences for care. This can help you to ensure that their wishes are being respected, and it can also give you a better understanding of their needs.
  • Seek support from a neutral third party: A therapist, counselor, or social worker can provide you with a safe space to talk about your concerns and can offer guidance on how to communicate with other family members.
  • Join a support group: There are support groups available for people who are caring for loved ones who are receiving hospice care. These groups can provide you with a sense of community and support, and they can also be a good source of information and advice.

Navigating Hospice When Families Disagree:

  • Focus on common ground: When families disagree about hospice care, it can be helpful to focus on common ground. What do all family members agree on? Do they all want what is best for the loved one? Once you have identified some common ground, you can start to build on that.
  • Communicate respectfully: It is important to communicate respectfully with other family members, even if you disagree with them. Avoid using personal attacks or blame. Instead, focus on stating your own needs and concerns, and try to listen to the needs and concerns of others.
  • Be willing to compromise: In some cases, it may be necessary to compromise in order to reach an agreement about hospice care. Be willing to consider the other family members’ perspectives, and be open to finding a solution that works for everyone.
  • Seek professional help: If you are unable to resolve your disagreements on your own, it may be helpful to seek professional help from a mediator or counselor. A professional can help you to communicate more effectively and can help you to find solutions that meet everyone’s needs.

Here are some additional resources that you may find helpful:

  Remember, you are not alone in this. There are people who care about you and want to help. Please don’t hesitate to reach out for support.